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On the Flip side of the diagnosis (Trading Places)

The first thing I noticed was the hurried shuffle of shoes and the constant chime of texts, emails, and secure chat messages. Usually, I moved through the day almost automatically, answering messages, reviewing test results, and counting how many patients I still needed to see. Today, however, I was sitting in an outpatient clinic, waiting for my own appointment.
I caught my reflection in a mirror. Where I expected to see long black hair with a few strands of gray, a Hispanic man of about forty stared back at me. A large mass protruded from my neck. I raised my hand to touch it, feeling its firmness and the pressure that made turning my head difficult.
Beside me sat a frightened woman holding a small boy, perhaps five or six years old. I looked down at my hands. They were unfamiliar, rough and calloused from years of physical work.
Had I somehow stepped into the life of one of the patients whose experiences had inspired my dissertation?
A woman in black scrubs opened the door.
"Mr. Cortez?"
I tried to explain that she had the wrong person, but the words came out in Spanish. Before I could make sense of what was happening, I was following her down the hallway. The woman and child came with me.
In the exam room, a nurse practitioner who looked exactly like me sat down at the computer. With an interpreter on the line, she confirmed my name and date of birth. Then she explained the results of a biopsy taken from the mass in my neck.
Aggressive lymphoma.
The mass had grown since my last visit. I needed to begin treatment promptly because it could soon interfere with my breathing. The disease was also present in other parts of my body.
I heard the interpreter speaking, but I struggled to follow. My hand returned to my neck.
The woman beside me began to cry. As she reached for my hand, I understood that she was my wife. The little boy leaning against her was our son.
I tried to comfort her, although I was frightened too. Everything seemed like a blur.
Would I die? If I could not work, how would we pay the bills? Would we lose our insurance? Our home?
My wife began asking questions through her tears. Would she need to find a job? Who would care for our son? How often would I need to come here, and how much would treatment cost?
The nurse practitioner was explaining the next steps, but my thoughts kept returning to the same question: How could I begin treatment when my family depended on me to keep working?
Then a familiar face appeared a petite Vietnamese nurse navigator who looked like my friend Van, but she is not a nurse navigator, her warm smile and calm manner helped me catch my breath. Working with the interpreter, she reviewed the plan slowly and paused to give us time to ask questions. She wrote down her contact number and explained how we could reach her between appointments.
At first, I said very little. I wanted to protect my family from my fear, and I was not sure how to admit that I was already thinking about missing work and paying bills. The navigator asked what worried me most about starting treatment. When I finally answered, she listened.
She explained that other patients had faced similar concerns and described resources we could explore together. She could not promise that every problem would be solved, but she helped us identify the next steps: whom to contact about insurance, where to ask for financial assistance, and how to address transportation and scheduling difficulties. For the first time since hearing my diagnosis, I could imagine how I might get to that first treatment appointment.
As I returned to my own life, I carried the encounter with me. As a nurse practitioner, I am accustomed to explaining diagnoses, reviewing results, and recommending treatment. From the patient's chair, I had struggled to absorb even familiar medical information while worrying about my family's survival. I began to question how often I had mistaken a patient's silence for understanding or readiness to proceed.
Now, as I study the lived experiences of oncology nurse navigators caring for Hispanic/Latino patients with aggressive lymphoma who face financial toxicity, I find myself thinking more deeply about these conversations. I want to understand what navigators notice, how they earn patients' trust, and what it means to help when resources are limited and answers are uncertain. Their experiences deserve to be heard in their own words, including the frustrations and difficulties that may remain unresolved.
I cannot know another person's life simply by imagining it. But this imagined exchange reminds me to make more room for what I do not yet know. In my next patient encounter, I want to pause before moving on and ask, "What worries you most about being able to follow this plan?" Then I want to give the answer the time it deserves.
 

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